Jul 15, 2008

Hybrid

It has been determined that the plan moving forward is to wait to see if there is any more change in the next few days, and if there isn't, they will do a "hybrid" procedure on Thursday. I have seen too many X-files and Sci Fi for hybrid to sound really great to me. But, here is a good explanation we found of what this procedure actually is:

"When a baby is born with an underdeveloped left side of the heart, the left side of the heart cannot fill with oxygen-rich blood from the lungs or pump it around the body. Instead, this blood is forced back into the right side through a small hole joining the two sides of the heart. From here, blood can only reach the rest of the body by bypassing the lungs through a small duct joining the major vessels from each side of the heart (the ‘ductus arteriosus’). This duct is normal before birth but usually closes in the first few days after birth. Once the duct closes, babies with an underdeveloped left side of the heart are likely to die within the first few weeks of life.

The hybrid procedure is an alternative that avoids major open heart surgery until the patient is older. It involves two or three parts that may be done together or separately. Two parts are usually performed through the blood vessels (‘interventional radiology’) and involve a puncture to the skin for access. The first improves the blood flow to the right side of the heart by enlarging the hole in the wall between the left and right sides of the heart, while the second prevents the duct from closing by using an expandable tube (called a ‘stent’). Together these enable the right heart to pump blood more easily around the body. The third part of the hybrid procedure involves placing tight bands around the arteries that carry blood from the right side of the heart to the lungs (the ‘pulmonary arteries’). These further encourage blood flow through the duct to the body."


This will prepare Mia to be able to wait for a donor heart without relying on drugs to keep the Ductus open. She will be more stable since the drug causes undesirable side affects such as apnea (they have to watch her closely and often give oxygen), higher temperature (no swaddle), Sleepy (she sleeps most of the time.) And there are a few other side effects as well.

Thursday Mia will also be added to the donor list and begin waiting for a heart. It was a tough day to get another reality check of the event to come as well as Mia having to get a blood transfusion. Sweet little Mia doesn't have a vein that can be found that would work for the transfusion so they had to put the IV in her head. She is doing well and still fights for life. We like to think she is also fighting for mommy, daddy, brother and sister. We sure need her. We look to the day when we can bring her home and hold her as long as we want. Thanks again for all who have spoken kind words, uttered our names in your prayers and for all the help and offers of help that have come from all angles. I have found that I cannot stand alone on this, and am truly grateful for all the support.

10 comments:

The Reynolds Family said...

What a BEAUTIFUL little girl you've made! You are constantly in my thoughts and I will continue to pray for her steady climb to a healthy outcome! You are a blessed family!

anniewalkfam said...

we are so sorry for your heartache at this time and we are continutally praying for you guys. you guys are definitely not alone in this. Mia's a fighter and a beautiful one at that!

jayna said...

Oh guys! Good luck!

Jim Hutchings said...

Fight On Mia...Fight On! And come-on guys. In all the X-Files, and other Sci-Fi stuff, the Hybrids usually kick butt.

Brittany Osborn said...

Good luck sweet Mia and family!

Chad & Keysha Peck said...

What a sweet little baby! (Love her name!) I am rooting for you guys everyday....Your blog is such an inspiration to read. You are amazing parents who have such steady faith. Thanks for the reminder to be forever grateful for the little things in life!

I am wishing your family the best.

Oh, and I am even more impressed Mimi that your husband posts on your blog!

The Eggett Family said...

I can't go a day, sometimes even a couple of hours without checking up on little Mia and your family. I know I leave a comment on almost every post, but it helps ME feel better, so I hope It's not annoying.

I just love you guys and little Mia so much, and wish I was closer to help out. Hang in there!!! Mimi you look amazing by the way and John thanks for all the posts you make, they make my day.

Shila said...

John and Mimi, my heart is full of hope for baby Mia's. I hope and pray she will continue to be strong through it all. I was wondering about visitors and if we can come see her/you all. Let us know if this is possible. Are you going back and forth from hospital to home, and is there any food needed? I love having your blog to read and know how she is doing. We love you, Shane and Shila

Grandma Conway said...

Testing

Grandma Conway said...

As I look at the sweet pictures of John, Mimi, Jensen and Ellie with baby Mia, I try to think of something eloquent and meaninful to say. Amen to all of the comments here so far. No words come, just a feeling of how much I love my new little granddaughter. May God hear our prayers..Love Mom