Jul 22, 2008

Two weeks old!



It has been an eventful two weeks for us all. Yesterday Mia finally got her breathing tube removed. We are so glad for this since it means she has recovered even more from her surgery and her lungs have gotten stronger. Another step towards a healthy Mia. Her cry is raspy due to the tube that has been in since last Thursday. She even got an ounce of formula through a feeding tube to see how her stomach would do digesting food. That was Sunday, and today they are supposed to try a little milk to see if she is ready. If she is, Mia will slowly be introduced to milk through a bottle since it takes a lot of energy to nurse, and since they need to monitor amount of food taken in. Mia is really really hungry. She keeps trying to eat Mimi's arm, and when the breathing tube was in she was actually sucking on it.

Oh, and they finally told us how long Mia was at birth! A couple weeks late, but she is 17 inches long! What a shorty. Mimi has nicknamed her "shortcake." That will be the first of many names, since we are nickname people.

Today Mia's IV from her head was removed. Thank goodness. Poor thing looked so uncomfortable. Tomorrow Mia will be listed on the heart transplant list. What we know so far is that we had better get used to not being able to plan everything with a time line. The donor heart could arrive tomorrow, or it could arrive in 4 months. That part is unpredictable. Once the heart transplant occurs, it is 2 to 4 weeks in hospital for recovery before going home. The good side of having to wait is that she will have time to grow stronger with hopes for a quicker and stronger recovery. As far as taking her home with us while we wait for transplant depends on Mia and how she progresses. Today having the breathing tubes removed was a big step in the right direction. On another good note, there are no other babies on the transplant list, which covers a four state area.

8 comments:

jayna said...

She is a shortcake! Sounds like all the prayers are certainly helping--stay strong and hopeful guys!

Carrie Hellewell said...

Shortcake...that's so adorable and seems to fit perfectly. She's so precious! Glad things are going as well as can be. Love you guys!

anniewalkfam said...

yeah! i was so happy to see her tube removed yesterday as I know Mimi was. She was so anxious all morning. I'm so glad her IV is out too, that was pretty sad! You need to post another picture of her without all that stuff as she is so beautiful! Yeah for food. That'll help her put on the pounds for sure!

Diana & CJ said...

She is beautiful. I know I don't check you blog very often because I didn't even know you guys had baby#3. Congrats! She is so tiny & cute. I love the photos below with the big flower in her hair.
Glad to see everything is getting better. Good luck with everything. I will keep you guys in my prayers.
Di

Anne and Dillon said...

Yesterday Eli and I were saying his nightly prayers and including baby Mia. He looked up at me and said, "Aunt Mimi has a new baby Mia and the robots are checking her." He thinks that the doctors and nurses in the pictures look like robots with their face masks and medical gowns. So funny.

keysha said...

What a sweet little baby! I love the pictures with her brother and sister--that is too precious!! (And quite tear-jerking!) What a loved little girl. I am glad things are progressing well!

The Eggett Family said...

Prayers are definitley being answered, It's so fun to read about all these little miracles that are continuing to happen for little Mia. I'm so thankful for a Heavenly Father who is aware of each of us and especially little tiny Mia at this time.

It sounds like you guys have a wonderful support system and lots of love coming in, in so many different ways. I wish I could do more for you.

Rebecca said...

These pics are so sad! She's a brave little one.