Jul 22, 2008
Two weeks old!
It has been an eventful two weeks for us all. Yesterday Mia finally got her breathing tube removed. We are so glad for this since it means she has recovered even more from her surgery and her lungs have gotten stronger. Another step towards a healthy Mia. Her cry is raspy due to the tube that has been in since last Thursday. She even got an ounce of formula through a feeding tube to see how her stomach would do digesting food. That was Sunday, and today they are supposed to try a little milk to see if she is ready. If she is, Mia will slowly be introduced to milk through a bottle since it takes a lot of energy to nurse, and since they need to monitor amount of food taken in. Mia is really really hungry. She keeps trying to eat Mimi's arm, and when the breathing tube was in she was actually sucking on it.
Oh, and they finally told us how long Mia was at birth! A couple weeks late, but she is 17 inches long! What a shorty. Mimi has nicknamed her "shortcake." That will be the first of many names, since we are nickname people.
Today Mia's IV from her head was removed. Thank goodness. Poor thing looked so uncomfortable. Tomorrow Mia will be listed on the heart transplant list. What we know so far is that we had better get used to not being able to plan everything with a time line. The donor heart could arrive tomorrow, or it could arrive in 4 months. That part is unpredictable. Once the heart transplant occurs, it is 2 to 4 weeks in hospital for recovery before going home. The good side of having to wait is that she will have time to grow stronger with hopes for a quicker and stronger recovery. As far as taking her home with us while we wait for transplant depends on Mia and how she progresses. Today having the breathing tubes removed was a big step in the right direction. On another good note, there are no other babies on the transplant list, which covers a four state area.
Posted crazily by John Boy at 8:00 AM