Jul 13, 2008

Waiting




We are still waiting for the big pow wow to happen so that the doctors and surgeons can meet and decide how to proceed with Mia. What we hear changes a bit from doctor to doctor, but today they were saying that Mia's Left Ventrical is still not beating any stronger. Her Aortic valve is open, but they have a difficult time measuring if it is all the way open due to the fact that in order to measure the flow, they would need a normal amount of pressure pushing the blood, which they don't have due to the non-working Ventrical. This doctor's opinion is that the valve isn't fully open because in his opinion if the flow was there, then the ventrical would begin pushing blood, which it hasn't. We are a little discouraged, but pressing forward. It is still most likely to be a heart transplant, but there will most likely be a procedure or more in order for Mia to be able to stay healthy while waiting for availabilty. The doc said it is usually a couple months of waiting, though it could also be a couple days. Thanks to all for your support. This will be a long haul, but you've seen the pics, we will make it happen the best we can for this sweet little angel. On a good note, she has gained two ounces, to arrive at 7lbs even. All that from an I.V.!!!

10 comments:

Kevin & Andrea said...

mimi she is SO beautiful. Good luck with everything, I hope all goes well! We are keeping you in our prayers. Your kids like the best and prodest older siblings. I love all of these pictures :) P.S. you look beautiful as well!

The Eggett Family said...

OH, she is so sweet, just absolutley perfect. Hang in there - I'm sure it's incredibly hard to just have to wait and wait, and be patient. You guys will be blessed, Heavenly Father knows you personally and will continue to bless Mia and your family as you go through this trial. Love you Guys, you all look great.

Suzie said...

Wow I didn't realize how very much she looks like Meems!!! We'll have to get out the baby pictures and do a side by side, for sure! We are praying for you all every day! She is so beautiful and sweet and tough! I can't wait to see her!

Erin said...

What a sweetie! She is beautiful! I'm sure it is heart wrenching to have to wait and wait, but it sounds like she is in good hands and with very capable doctors. Meems you look beautiful - as usual! I check your blog often for updates so thank you for keeping us all posted! Stay strong and I hope all goes well the next few days! Love you!

Crystal said...

Oh my goodness! Look what happens when I stay off the computer for a few days!!

SHE IS BEAUTIFUL!!

Congratulations! My prayers are with you and especially Sweet Baby Mia.

Is she already on the Transplant Waiting List or are they waiting till they decide for sure thats the route they want to take?

FoxFamilyFive said...

What a gorgeous little Mia you have. She is truly a miracle. It sounds like you have had your fair share of the roller coaster that is peds chronic illness. I will be praying for you and your support system and especially for your sweet little Mia.

We grew to love Children's. It got to the point that when we talked about going to Seattle the kids all thought we meant the hospital! Ha ha. My boys LOVED the attended sibling playroom. It was SO handy for appointments etc.

Much love to you and yours. =)

Steven and Whitney said...

Mia is absolutely gorgeous!! Not to mention how beautiful you look Mimi. I can tell that brother and sister love their new baby.

Sheri said...

She is absolutely beautiful. I'm trying to figure out a time to come see you up at the hospital. I'll give you a call soon!

erica said...

seriously every time i come and look back at these pictures and get updates on you guys i just think to myself how absolutely gorgeous she is!

you guys are awesome!

Ronell Hugh said...

John and Mimi, she's beautiful! I know this day has been a long day in coming. We'll keep McDonald family in our prayers, especially little Mia. Congrats!