Aug 22, 2008
Baby Mia is holding strong. There isn't much of an update other than how cute she is. She spends a lot more time awake lately, and does the cutest things. Mia has a permanent furrowed brow that has created creases above her eye brows. This is most likely due to the fact that she is wondering what is going on. When she sneezes her entire head crashes forward (and she sneezes a lot!) Whip lash wouldn't be very fair on top of everything else she has going on. She also likes to twist her fingers in her hair (obviously not on purpose) but her fingers are always on the move up behind her ear.
She still only weighs 7 1/2 lbs- but is is 23 inches long. The doctors don't really change anything from day to day. They just want to keep her stable and eating (well not eating, but food going into her intestines). Hopefully there will be an update soon that she is getting a transplant!!
Posted crazily by John Boy at 1:00 AM