Aug 5, 2008

Calm before the storm



Mia has decided that she prefers Helicopter to Ambulance. Yes that is right, we had to Life Flight Mia on Sunday night. Her heart just isn't strong enough to sustain her all by itself. She is now stable in the ICU at Children's Hospital. We did have a wonderful week previous to this though. On Wednesday July 30th we got to take Mia home. We truly had great joy as we were able to interact as a family again. The kids LOVE their sister. Mimi got to recoup a bit being home, and we all got to be together and hold baby whenever we wanted.
In order to come home, Mimi had to learn to administer all necessary medications. Two were taken orally and one via injection. We had to monitor her Blood/Oxygen saturation as well as her other vitals. We enjoyed 4 solid days together in our home. We also had Mimi's youngest sister Boonie in town along with her fiance Carl who the kids and I met for the first time. We all got to hold Mia for hours on end and made some headway on making up for lost time with our sweet baby.
On Sunday Mia started to spit up her milk and was acting a bit agitated. We decided to take her to Children's Hospital, but by the time we walked downstairs, her blood/oxygen saturation had dropped from mid 80% to 45%. We panicked and ran out of the house to go to Good Samaritan Hospital without even our shoes on! Since Mia is a heart patient and especially since she has a very delicate and specific problem, they didn't even know what to do with her down at Good Sam. They got her vitals to be stable (her blood sugar was at 5, and they got it bumped up to 105) but her breathing was still very labored. There wasn't an ambulance close by that was well enough equipped to handle Mia's risks so they sent for the chopper. I was thinking that "finally something good from this night, at least we get to right in the chopper!" Well, we had to drive ourselves up there. No parents in chopper. We actually saw them fly over us when we were on Hwy 167 heading northbound towards the hospital. he doctors informed us that she is suffering heart failure and needs more help due to the fact that her heart just cannot handle the workload. They intubated her to lighten the load of the heart by taking the work of the lungs. They are also medicating her to loosen certain parts of the heart and tightening others so that it will flex with less effort, and also the blood can exit the heart with less resistance. Our hope is that she will become stable enough to be able to remove the Breathing tube so she can be fully conscious while waiting for a heart. Our hearts are broken once again by this new chapter in Mia's journey, but we are eternally grateful for the time we got to have at home all together when she is so small and life is so new. For now it looks like we are back at the hospital. Mimi wanted to let everyone know that she loves all the work that has been done on the house. It looks great and she was able to enjoy it for the time she was back home gathering strength for the next challenge. I have marveled time and again at the strength Mimi has shown.

7 comments:

The Eggett Family said...

Poor Little Mia - I'm glad she is stable now. Just keep remembering that this too shall pass - soon she will be strong enough!!! Hang in there!

Heather and Tim said...

What strength you show John, and sweet Mimi, too. I'm so glad Mia is stable again. My thoughts are with you and Mimi constantly, as well as a prayer in my heart for you. It seems strange to go on with a normal summer day in my world, while you guys are going through so much. Please call again to let me know of any way we can help.
Much love...

Suzie said...

Meems, What a rough time. I'm glad she is OK now, but that must have been so hard! Know that I love you and Mia and we are always thinking/praying about/for you!

Tracy Family said...

Sorry guys, I'm sure that was scary! We will be at Children's and UW medical center also every now and then up to the birth of our boy and who knows what after, so maybe we should meet up! I still want to meet beautiful Mia. You are in our prayers. Love Ashley

Anne and Dillon said...

My heart is breaking too.

Erin said...

I'm so sorry to hear this! It sounds like you have definately been on an emotional roller coaster and went from one high to an extreme low. Thank goodness for life flight and the amazing doctors that are taking such good care of Mia. You continue to be in my prayers and that I pray everyday that Mia will get her new heart soon.

Kelli said...

I'm so glad to be reading this so far down the road, I dont know if I could have read it when it happened. Hugs and prayers for you all.