Aug 12, 2008

Miss Mia




We figured it was time for an update on our Precious Mia. "On Paper" Mia doesn't look too good. Her heart function hasn't improved since she returned to the hospital. From the time that we took her home, Mia's right side of her heart (the working side) is even more dilated than the deformed non-working left side. From what I gather, they are keeping Mia stable via an orchestra of medications, constantly consulting many professionals and tweaking meds depending on her latest problems and reactions. We have been impressed time and again at the skill and wisdom of the nurses and doctors caring for her. The doctors say we will not be leaving icu any time soon, and after that last bout of drama, I (John) would just assume keeping her here anyhow just to be safe. Mia has been on C-Pap (breathing assistance) but gets breaks. According to Mimi, this device makes her look like an elephant because it connects to her face and nose and goes upwards like a trunk. I personally think it looks like that thing on that old movie "Alien" when it attached itself to that guys face and they couldn't get it off. I think Mia probably enjoys it about as much as if it were indeed and alien. She is sassy like her mom and sis and you should see the fight that this one month old puts up against this device. Also, since her heart cannot function well enough to pump the necessary blood to her stomach to digest food, they started feeding her today though an ND tube which bypasses the stomach. It is a small amount of food, but nonetheless it will get her digesting food. Apparently it is bad news if the stomach goes for a long period of time without digesting. This seems to be the same story with most of Mia's functions as a brand new body learning to live. I know they keep weening her from the breathing machine so her lungs can learn to breath and grow strong. One thing is certain. Mia is fighting with all that she has. The doctors tell us her ex rays and all info is pointing to bad news, but somehow Mia is getting decent amounts of oxygen to her extremities. We love her more than we can express. Thank goodness Mimi is as determined and as tough as she is. I was fine for the first month, but I have since discovered that I am about as tough as a swooning lady of the court when I am faced with each new dramatic twist in Mia's condition. We are grateful for all prayers and words of support. Without God's hand on our shoulders, and without all those around us acting as His angels we would surely have cracked by now.

9 comments:

jayna said...

Keep the spirits up MacDonalds- you have a beautiful baby!

And that switched-plate story is about the sweetest thing ever!

Brittany Osborn said...

Thank you for updating. Here's to more prayers for things to look up.

The Eggett Family said...

She is just too sweet for words, she looks so peaceful in that picture, Thank Goodness for medical technology and a Heavenly Father who knows and loves her. I will continue to pray with you, for her new heart to come soon!!! You are both so strong and Mia is incredible!

I'm sure you've thought about this, but how about a special fast for Mia? I would love to be part of this.

Jennifer said...

What an amazing baby girl! And amazing parents too!

Rebecca said...

Wow, she looks cute! I don't like any bad news, WHERE IS HER HEART ALEADY! What a strong little girl and family. We love you all and keep you always in our prayers.

Sarah said...

I just got caught up on so much! Oh my goodness. How sweet that miss Mia could be home with you guys for a little while, I'm so sorry that it was cut so short. We will be praying for her!! What a sweetheart. And the outlet plate story with Jensen is unbelievably sweet. You are definitely some of our favorites. We love you guys!! All of our love and thoughts and prayers are with you!!

Talia said...

Your sweet Mia is such a fighter. We are all praying for her and I know that "on paper" it may look bad, but with all your little angel has gone through, she will come through.

Yergensen Family said...

keep the faith! My heart goes out to you! Mia will always be in my prayers.

Tim Hannah said...

Thanks for keeping us updated. Our thoughts and prayers are with Mia and the entire family. Hoping to hear the news that Mia is heading home soon.