Aug 12, 2008
We figured it was time for an update on our Precious Mia. "On Paper" Mia doesn't look too good. Her heart function hasn't improved since she returned to the hospital. From the time that we took her home, Mia's right side of her heart (the working side) is even more dilated than the deformed non-working left side. From what I gather, they are keeping Mia stable via an orchestra of medications, constantly consulting many professionals and tweaking meds depending on her latest problems and reactions. We have been impressed time and again at the skill and wisdom of the nurses and doctors caring for her. The doctors say we will not be leaving icu any time soon, and after that last bout of drama, I (John) would just assume keeping her here anyhow just to be safe. Mia has been on C-Pap (breathing assistance) but gets breaks. According to Mimi, this device makes her look like an elephant because it connects to her face and nose and goes upwards like a trunk. I personally think it looks like that thing on that old movie "Alien" when it attached itself to that guys face and they couldn't get it off. I think Mia probably enjoys it about as much as if it were indeed and alien. She is sassy like her mom and sis and you should see the fight that this one month old puts up against this device. Also, since her heart cannot function well enough to pump the necessary blood to her stomach to digest food, they started feeding her today though an ND tube which bypasses the stomach. It is a small amount of food, but nonetheless it will get her digesting food. Apparently it is bad news if the stomach goes for a long period of time without digesting. This seems to be the same story with most of Mia's functions as a brand new body learning to live. I know they keep weening her from the breathing machine so her lungs can learn to breath and grow strong. One thing is certain. Mia is fighting with all that she has. The doctors tell us her ex rays and all info is pointing to bad news, but somehow Mia is getting decent amounts of oxygen to her extremities. We love her more than we can express. Thank goodness Mimi is as determined and as tough as she is. I was fine for the first month, but I have since discovered that I am about as tough as a swooning lady of the court when I am faced with each new dramatic twist in Mia's condition. We are grateful for all prayers and words of support. Without God's hand on our shoulders, and without all those around us acting as His angels we would surely have cracked by now.
Posted crazily by John Boy at 4:30 PM