Sep 28, 2008

It turns out....

That we are STILL HERE!! You can interpret that positively or negatively. Yes, we are still here, but we are STILL HERE! My little daughter Mia is something else. She has been spiking fevers of 104 degrees for the past two days. All of her cultures are coming back negative, but she has been on antibiotics and they think whatever she has is being masked by the antibiotics. They run many weekly test on her. One test which measures heart function (bnp) was 4000. Normal numbers would be anywhere from 1-100. One of the nurses informed me that in all of her nursing career she has never seen a number that high. Awesome! Mia really likes to break records. I am continually amazed at her ability to beat the odds. It has been a difficult week with her fevers, and heart rate at 220, but she is finally resting.

On the Thank you front- I am super behind. My husband mentioned that I have great friends- and he is right!! I am so lucky that I am not in this alone. The best women I know have been cooking, bake saling(is that a word?), tending, homeschooling, sewing, driving my children to me, taking my kids to piano /preschool,and calling the ICU all the time to keep me company. When I came back from the wedding I had many packages waiting for me. So many of my new heart mommy friends and long time friends are spoiling me. I really appreciate everyone's love and concern as I go through this crazy time. Oh, and I have watched a few wedding videos- thank you for responding to my request.



Me and Mia- we have been spending a lot of time together :-) We need a heart! Boy do we need a heart.

20 comments:

Katie said...

I'm glad you posted...was missing hearing from you. It's got to be any day now! I can't imagine how anxious/nervous/frustrated/excited you are for that day to come- hang in there Mimi!!!

Glad you like the apples and yes, I did make the cake (little lopsided). I love making the kids birthday cakes. I love your new look on the blog too :) Great title.

Mia, stay strong sweetie and before we know it, we're going to have a very fun "heart friend day out": Suz, Mimi, Katie, Teagan, Mia and Maddie. I can't wait!!!
Love and prayers for you both,
Katie

Lauri said...

You are so strong Mia that I know you'll hang in there for that heart. And Mimi, you have such wonderful friends because you are wonderful. Kind of hard not to have such an uplifting spirit with your big ol' smile around. We love you.

The Smith's said...

I love that you stump the doctors with your fight and your strength, Mia! Stay strong, sweet girl, we are praying for a heart to come SOON! Mimi - I'm so glad you feel supported and surrounded during this long wait. Again, since we're so close in Puyallup, please let me know if you need anything ... Love to you all!

Jesse, Rog & Luke

The Eggett Family said...

Mimi - I'm so glad you posted, I've missed your posts. Mia is such a little fighter, and so STRONG to beat the odds of all she is going through. She is JUST AMAZING!!! I am so glad you and your family is being so well taken care of. It puts my mind a little more at ease, to know you are surrounded by such good people!!!
I will continue to pray pray pray for her new heart to come VERY soon!! I love that pictures of the two of you. She loves her Mommy - you can just see it in those big eyes, as she looks at you.

Jen said...

Hey Mimi,

It was great running into you at the hospital on Sunday. Like I said, I can't seem to ever catch you in the room (I think we take breaks at the same time of day!) so I thought I'd just leave you a note here to give me a call when you have the chance. Our number is 425.277.4137. Hope to talk to you soon.

Jen Faultner

Erin said...

Mimi.....you are SO beautiful! It must be an exhausting wait for that new heart. It has to be coming soon. We continue to pray for Mia, and will start praying for the donor family as well. Hang in there, and keep fighting sweet baby Mia! Love you!

Stephanie said...

LOVE the new blog look!! Mimi..you look amazing!! How do you do it girl? (Mia, you do too, but I wanted to give your mom some props!) MOPS starts on Thursday....you are missed and covered in prayer!! Love, Steph

Sarah said...

Mimi, you are gorgeous! You look so beautiful in that picture with Mia, and she looks adorable with her cute little chin chub (I love it!) and that she's looking up at you. Such a cute picture. Hang in there, it has to be soon!!! All our appendages are crossed and you are still in our prayers. Love you!

Izabell said...
This comment has been removed by the author.
Izabell said...

Hello! my daughter Izabell was born with a CHD also and is looked after by seattle childrens. We are friends with Jen & Zoe. I came across your blog after my friends in Puyallup were at the Y bake sale. and wanted to say hello! you can visit her blog at
www.allthingsizzy.blogspot.com

I just wanted to say hello!

There is a heart support group that meet at Children's the 1st Sunday of every month. We meet at 2pm -4pm in the meeting rooms by the cafeteria. Heart-to-Heart Congenital Heart Defects Support Group.

info on this group here...
This parent-led support group is for Puget Sound families of children affected by heart issues. We welcome families dealing with congenital heart defects (CHD), heart conditions from illness, heart transplant, or who are grieving the loss of a child to a heart condition.

We are here for parents who have been told that their unborn baby may have a heart problem. This group is also a place for our heart kids and their siblings to meet others who have gone through similar times.

We meet once a month at Children's Hospital in Seattle. Childcare is offered during the meetings. If you would like to join us or you want to know more, please call Josephine Young, MD at (425) 827-4600 or e-mail heartmom1204@yahoo.com.

mbishopp said...

Wow, Mimi, you look great!

Our heart aches knowing you're still in the hospital waiting. It is the waiting that is the hardest. You and your little Mia are being watched over by angels from your ward and your friends from everywhere. Keep up the hope, the love and your energy that this will soon be over with and you will be able to hold your little girl with a new heart soon.

We love you guys and think of you often!

Monica

Beth said...

I wish that I could have seen little Mia when I was there on Monday but I am glad that I was able to see you and hang out for a bit. You are beautiful. Keep hanging in there. I love you. Mia will get a heart soon.

Yergensen Family said...

I love that picture of you two. you look beautiful and little Mia is just looking at you so peacefully. She knows her mommy loves her. Keep your spirits high it will come...

Cindy said...

Hey Mimi! Great to see you and the family yesterday. Hope to see little Mia again soon! Have fun with the utensils- and keep your smile on- we love it! Also- I broke down and started a blog- it's really basic right now, but here it is: http://theeaglinclan.blogspot.com/

Jennifer said...

You two are too cute! My thoughts and prayers are with you always! Keep hangin' in there!

Erin said...

I was just reading about your family and I am so sad to hear all the heart ache you are going through. I would not be as strong as you have been. I will pray for Mia and I know that she will get whats she needs. Hang in there!

Erin Ricks
(Katie Langstons sister)

CANDS said...

oh mimi i love this picture of you and little mia!! so adorable! it was my privilege to be with her this last week. shes been an angel. my last night with her (thurs night) she was so wonderful, heck i was holding her just for being so adorable (and not for consoling purposes). and also it was fun looking at your post on your sis's wedding. hopefully next time im at childrens there will be new news :) give little princess a hug for me! :)

FoxFamilyFive said...

I love the way Mia is gazing at you in this photo. =) So very sweet. =)

Stephanie M Larsen said...

Mimi you are so amazing. I can't tell you how touched I am by your faith and and happy spirit. Your posts and pictures are so sweet and encouraging. I just feel inspired to be that kind of mother to my 3 little ones. What a blessing your happy spirit must be to Mia, John and your other 2 little ones. I would just love to meet you in person one day. :)

Stephanie M Larsen said...

PS. Your in our prayers at least 3 times a day. My little 4 year old has been so good about remembering "Baby Mia and her family" in our prayers. Just wanted you to know.