Oct 10, 2008
Mia is 3 months old
Well the strongest little baby on the planet turned 3 months old. She has been such a trooper the last couple weeks. This last week has been kind of a roller coaster.
Mia continues to spike a fever twice every day. The nurses culture her over and over, but nothing ever turns up positive. The last couple days ID (infections disease) has been running all sorts of labs. Mia had her first CT scan, which came back clean. They did discover however that she has blood clots in her right leg. This was caused by the two different caths she had the first weeks of life.
Three days ago they did an ulrasound on her head to determine if she had a stroke. What??? yes, I know! I pretty much felt the tissue in my own heart ripping when they mentioned it. Mia had been so lifeless the two days prior, and she usually has so much fight in her. I was really concerned because her spunk was gone. They gave her some narcan, and she woke up more after that. Apparently her kidneys are having a difficult time with all of the medications that help sedate her. All of her tests for viruses and infections came back negative. They have no idea why she has this continual fever. I guess sometimes babies with severe heart failure just have fevers. So for now, they are just blaming the failing heart. One of the transplant cardiologists is concerned because if they are missing something and they transplant her, it would be very detrimental due to the overloading of immuno-suppressants given post transplant.
On a lighter note- she now has a cute little squeal she does instead of cry. Because she never feels good (high fevers) she gives us little shout outs to let us know. Before she would strait up scream, now she just has a girly squeal.
I have been trying to get her to smile at me. Developmentally she will be behind, but I can't wait for her to look up at me and smile. She will open her mouth up really wide when I play with her, but I don't consider it a smile. She smiles a lot in her sleep (air in the tummy) but nothing due to all of my antics. A big smile is coming soon I can feel it... just like her heart!!
I have a renewed hope and faith for my little one. Yes, this is the most difficult thing I have ever experienced. However, listening to the general authorities speak this weekend during conference, I cannot deny how much it strengthened me. If you are not LDS, or don't even know what that is. Go HERE and listen to all four sessions of this conference. I promise you won't regret it, and it will inspire you to be a better person.
Mia and I will continue to kick it here until that glorious day will come. Where do you think I will be when I get the news?? I think about this question all too often. Will I be eating? holding her? at home? Where??? What will they say when they tell me... "Mimi, we got a call?" "Mimi, there is an offer?" What? I have created pretty much every scenario in my head, but would love to hear where you think I will be, and how they will break the news to me.
Here are some pics of Little Mees- I haven't posted any pics post head shave. I'm still not over it, but maybe posting the pics will get me one step closer ;-)