Oct 15, 2008
When it Rains...IT POURS
Well Mia was re-intubated yesterday. Due to her acidosis she is back on the breathing tube. All of Mia's tests for trying to figure out why she always has a fever came back. The doctors still have no idea why she constantly runs a fever. Needless to say, she is well acquainted with the ice packs- poor girl. If it isn't one thing... it's another. The girl amazes me with her will to keep fighting.
Intubation is never good, but it takes the work away from her heart. She doesn't have a problem breathing, but her heart failure requires more and more from her. Putting her back on breathing assistance gives her body a chance re group. she has been such a good sport. I mostly feel bad that she is separated from her pacifier. she LOVES it, and now has to suck on the tube.... sooooo sad!
She has developed a love for her birdie mobile. It plays music, and she wants it on at ALL TIMES. Even if she is asleep and it stops she will stir until someone turns her mobile back on. Good thing she has 24 hr care ;-)
Thank you to everyone who fasted this week- I really appreciate your concern for our little one. We REALLY want to bring her home, and can't wait to be posting pic's of her smiling (which won't happen until she is extubated).
Please keep praying for Mia- she is continually going down a "slippery slope" as the doctors refer to it.
Oh, and my computer decided to quit! Lovely! I mean, life was just going too good! It was high time for something to go wrong ;-).