Oct 15, 2008

When it Rains...IT POURS


Well Mia was re-intubated yesterday. Due to her acidosis she is back on the breathing tube. All of Mia's tests for trying to figure out why she always has a fever came back. The doctors still have no idea why she constantly runs a fever. Needless to say, she is well acquainted with the ice packs- poor girl. If it isn't one thing... it's another. The girl amazes me with her will to keep fighting.

Intubation is never good, but it takes the work away from her heart. She doesn't have a problem breathing, but her heart failure requires more and more from her. Putting her back on breathing assistance gives her body a chance re group. she has been such a good sport. I mostly feel bad that she is separated from her pacifier. she LOVES it, and now has to suck on the tube.... sooooo sad!

She has developed a love for her birdie mobile. It plays music, and she wants it on at ALL TIMES. Even if she is asleep and it stops she will stir until someone turns her mobile back on. Good thing she has 24 hr care ;-)

Thank you to everyone who fasted this week- I really appreciate your concern for our little one. We REALLY want to bring her home, and can't wait to be posting pic's of her smiling (which won't happen until she is extubated).

Please keep praying for Mia- she is continually going down a "slippery slope" as the doctors refer to it.

Oh, and my computer decided to quit! Lovely! I mean, life was just going too good! It was high time for something to go wrong ;-).

15 comments:

Kevin and Andrea said...

Sorry to hear that about little Mia. My heart really goes out to you. I had two nephews that were born at 24 weeks gestation (they were twins) and they had them intubated for about5 of the 7 months they were in the NICU. It is so hard to see them go through that. But we all know little Mia is a fighter, and she is still here for a reason. We pray for your family everyday, and I think of you often. Hang in there, because after it rains, then comes the SUNSHINE! I hope you see sunshine soon :) Much love, Andrea

Katie said...

Poor little Mia. Sorry to hear she's been intubated again...hopefully it can help give her heart some rest. So happy to hear that she smiled though!!! I'm sure that's brightened your days in the CICU. We pray daily for your darling family and know with our hearts that any MOMENT you're going to get that call!
Love,
Katie

Brittany Osborn said...

Sheesh. Poor baby. Still praying. Can't wait until you can post her smile.

The Coatney's said...

oh meems, i'm so sorry. "at least" her little heart can rest a bit and greys anatomy is on tomorrow. love you. i got your e-mail but i've been so busy with my dad here. miss you. talk soon. let's say a little prayer that your little mia will be home for christmas and my husband will be walking by christmas. we can make it that long! we can do anything the Lord needs us to!

Erin said...

OH NO! So Sorry Mimi! Can't wait to see the Sunshine that comes after the storm...it will come. I hope Mia can rest her heart for a few days. She is an amazing little spirit, and fighter. Prayers are always with your sweet baby and family. Love you!

anniewalkfam said...

oh meems, (and john) I'm so sorry. it seemed like she was kind of doing better too. maybe this will be a good rest before her new heart though. hang in there guys. you know she's a fighter!

Suzie said...

Meems,
I think about you all the time. Mia is a little fighter because she inherited all her spunk from her amazing mommy! She'll be in your arms sucking away at her binkie before you know it. Just hold on.
"Keep thou my feet, I do not ask to see the distant scene, one step enough for me."

Beth said...

Little Mia you are in our prayers. Makayla said yesterday, "I wish Mia could be at home with her family, relaxing." I wish the same!!

Hilary said...

I am sorry to hear she was intibated. Daxton was intibated the whole time we waited, and in some strang way it comforted me knowing that his heart didn't have the pressure of breathing also. Also Daxton smiled while he was intibated so keep watching for those smiles. The wait is the hardest thing, everyday is the longest day of your life. I too asked people how to do it. You just take it one day at a time and pray that someone says yes. I would love to talk to you if you need to talk, my email is hilarymcook@gmail.com. Hang in there. I pray everyday for it to be her day. Our babies are amazing fighters and they have a definite purpose on this earth. Hang in there. Much love, Hilary

leah said...

Oh, man! I am so sorry about Mia.
The sun will come out tomorrow! We will keep her and you in our prayers!! You can borrow Ben's laptop. IT might just drive you crazy though. Anyhow, it's under our bed!

Sarah said...

Oh, Meems, I'm so sorry to hear all of that! Hopefully the sun will come out tomorrow! We will keep you in our prayers, there are better days ahead! Love you!

CANDS said...

hey mimi...my little girl is constantly in my prayers (i feel pretty bonded to her :) ). the last few hours of my shift on tues morn is when things got not so nice. but i did hold her a number of times that night so she got some love before she got intubated (sometime on dayshift, not sure when). im sorry that she had to have the tube but know that it does give her some rest! she is such a beautiful girl!! i just think of her looking up with her big eyes wide open,sucking on her binky, and her upper look pouching out (just a bit)over the binky, so adorable! anywaysy, i came by last night (wed) but i didnt see you (i floated to nicu). ill continue to pray for her and all of you!!

FoxFamilyFive said...

We are praying for Mia, for you and your breaking hearts, and for Mia's perfect new heart.

You are never far from our thoughts and prayers.

And, for what it's worth...I, too, have had conversations with myself MNAY times about how the conversations would go when Hadley finally received her miracle. How the doctors would be baffled...what words they would choose. How they would try to explain it with science. You do what you have to do to keep on hoping. You are doing this tremendously hard work so well. Just keep giving that sweet little person all your love. =)

WIth Faith, Hope and Love,
Angela

The Eggett Family said...

Oh Mimi - Poor Little Mia, she just can't get a break can she. To look on the bright side, hopefully she can get some rest and gear up for that new heart that's just got to be coming SOON!

I love you - and am sorry you have to go through this.

Southern Belle said...

I pray for you often. My blog is now private. E-mail me at joyousnorth@gmail.com and I will send you an invite.