Nov 11, 2008

Day 2

Mia is doing Wonderfully!! My brain still cannot grasp the fact that it isn't her native heart beating in her chest. I feel like I have been walking around in the twilight zone all day. I am still quite sick- I can't figure out why my body is taking such a hit. There are so many emotions to deal with...mostly gratitude. Here are a few things that happened today-

My wonderful Aunt Lani made cookies! My sweet aunt has done so much for our family. Mia is so lucky to have such a wonderful aunt with such a culinary talent. The staff sure are enjoying them. Thanks Lan!

Sweet baby girl getting her very first post transplant echo. I have felt her new angel heart many times, it beats so perfectly!
It was crazy to see the new heart anatomy on the screen. I almost couldn't believe it! I have been watching echo after echo of a completely dilated right and left ventricle. Now, everything looks like it should. I did learn from the echo that she will always have a part of her stent that was placed in her PDA.
They took the dressing off today. I didn't know she would be all stitched up(they used glue before) but she has 26 stitches. For everything that went on inside that tiny body- it looks amazing!

These are the lovely echo ladies. Lara (on left) did a majority of Mia's fetal echos. I remember going in week after week fully expecting a miraculous recovery. She was always super sweet when Mia's heart looked the same as it did the week before. I love all the staff at NWCHC! If you are reading the blog- can you believe we made it??? Right after Mia was born she transferred up to Childrens. It has been nice having a friendly face that has known us from the true beginning of all of this.

To say that I am overwhelmed does come close to how I am feeling. There needs to be a new word for way beyond overwhelmed. Mia made it! I think this is why I feel like I am going to faint every five seconds. Praying and hoping, and enduring everything- and then within hours it's here. I am still struggling to process everything, but there will be many more posts to come.

A few hours ago she opened her eyes- and looked at me. It was the most joy I think I have ever felt.

more to come....

32 comments:

Baseballs and Tutu's said...

I have been checking on Mia all day so I am so relieved and happy that you posted an update! I look at her little body and just hate that she has to go through any of this...I'm just so thankful that she is doing so well and she is on the road to recovery!

Tonight I am praying for Mia's recovery and for you to find peace and strength in the days to come. May you rest comfortably and sort through your thoughts somehow. I continue to be in awe of your precious baby.

Thank you for allowing us all to be a part of your lives.

TheBastians said...

Mimi, that incision with 26 perfect stitches on your baby is gorgeous. I have goosebumps looking at it and reading this post. That scar will be a constant reminder, for the rest of all our lives, of the miracles of the Lord and of how much He loves us and of how good He is.

Amazing! You continue to be in so many of our prayers!

Carol said...

I'm going to start working on finding the word that means "more than overwhelmed." If I can't find one, I'll invent a new word in your honor. I can't imagine how you must feel - probably like a yo-yo. Up and down with hope and anxiety, and now all of a sudden really up with joy but physically worn out. Wow. We continue to pray for Mia - she looks great!

Anonymous said...

hey mimi our family is happy that she doesn't have that many tube in her!!!

morgan whittingslow

Sheri said...

She looks so beautiful. I can't even imagine all the emotions you must be going through! We'll be praying for her continued recovery and for you as well :-)

mbishopp said...

Way to go to all of you! We are all cheering for you and are so grateful Mia such a healthy body to accept such a perfect heart.

Lykins Zoo Keeper said...

It has been a few days since I've been able to check your blog and I began sobbing tears of gratitude when I saw that baby Mia got her heart. Your family has touched my life and the lives of so many other perfect strangers. I have been praying that somewhere a family in the midst of such pain, anguish, and sorrow would make the decision to donate their baby's heart. Words cannot begin to express how happy and excited I am for your family. So, So, So, happy that things have turned out so beautifully.

Curious - Where were you Mimi and what were you doing when the call came? (I remember a previous post when you raised those questions.)

Enjoy the future and your beautiful little girl. -A fellow RS sister in Columbia,SC.

Brenda said...

This is such an amazing story. An absolute miracle. Thanks so much for these frequent updates on your sweet baby.

Erin said...

I too, have been checking your blog all day! And thinking of you all day too! I just can't get you guys out of my thoughts....not that I want to, but you know what I mean! Wow! Incredible. I'm so glad to hear that Mia is doing good, and her heart is perfectly beating within her tiny body! What a miracle! I bet even after such a tough surgery, her little body is in so much relief. She is going to be such a happy girl when she wakes up and gets that tube out of her nose! And in her Mommas arms again!

Meems I wish I could have seen the moment when she opened her eyes and looked at you... I get teary just thinking about it. What a special, and sacred moment that must have been. I think experiencing what you have; every emotion, lack of sleep, gratitude, worry, love, happiness, etc- you are right on the nose with feeling "more that overwhelmed". I hope you will feel better soon. Thanks for the update and pictures. It made my night.

Love you

CO-9z said...

From one heart mommy to another, I remember having those same feelings and emotions after they said the surgery was successful and seeing my little girl for the first time. And then we felt as if we were starting to breathe again. When the stitches are gone they will reveal the most precious "Dr. Kisses". Your little angel has handled this gracefully as have you. Everyone asks how you do it, and the thing is we don't have a choice...it's our baby and we just do it! These heart babies have amazing spirits...they are true fighters. I hope someday to meet you. Another RS sister in the Sumner Ward! Congratulations!

Kirstin said...

Mimi, you and John should write a book... it would be one you couldn't put down... When reading your blog, it is like I can hear you speaking, and you touch me so deeply. The joy you felt when she opened her eyes and looked at you just got me... that line choked me up (as if your posts for the last 4 months haven't brought a tear to my eye each time.) I am so happy Mia is doing so well... and can't even imagine all going through your thoughts and body... all that you must be experiencing. Please make sure to take care of yourself along with keeping that gorgeous baby of yours continually strong and healthy. Mimi, you are honestly the strongest, most amazing person I have ever come across. I don't have the words to describe how you astonish and amaze me... but I can only pray to be like you. My prayers are still with your family. Take care, and I know John and the kids don't know me, but give everyone a hug from me and my love... I honestly feel that through this blog I have fallen in love with your entire family!

Shila said...

Wow they did a great job on the incision and stitches it looks so precise and a lot better than you would think. Great job Mia for hanging in there and for your faith. You are truly inspirational!

Abbs said...

Thank you so much for the updates. I love reading about Mia's progress and continue to pray for her new heart.

Brittoni said...

I am soosooo happy for your sweet little Mia. Over the past couple of days, whenever I leave the house and come home, I run to the computer to see if you have put up a new post. I am so happy for everything going soo well. You really are such an inspiration to all of us. Your family has such strength. It is amazing how you can be so touched by someone one through words and pictures, and feel such a sweet spirit that comes from your little family. I hope you start to feel better. I can't even begin to understand how you are feeling. Emotions can do so much to a person. I am looking forward to many happy posts about Mia and her road down recovery and I know everyone will continue to pray for her and your family.

Sarah said...

Oh, Mimi, I am so, so happy! So happy for you, Mia, your whole little family and that everything is working so well. I am amazed that you haven't actually passed out! I think I probably would have :) Mia looks so good! And so do those cookies, they look like a lot of love went into making them and absolutely delicious. You have some great people around you! :)

The Eggett Family said...

Mimi you are making me cry!! I'm sorry you are feeling so icky. Your mind and body and heart have been through SO much the past 4 months. I can imagine you are just plain worn out. You need a rest from this emotional roller coaster you are on. Please take care of yourself too.

Mia looks wonderful! I'm so happy she opened her eys. Before long she will be smiling at you, and letting you know how wonderful she feels. What a relief for that baby to not have to work so hard to just stay alive.

Keep posting pictures, and posts. We are all just dying to hear from you. I check your blog like 10 times a day, so please post whenever you feel like it. There's no such thing as too many posts.

I am so happy for you guys and for little Mia. Words just cant explain the magnitude of this miracle. She is the sweetest thing ever.

Pace and Liz said...

I have been following your blog for a while now and I am so happy that Mia recieved a new heart. My daughter was at Primary Children's for 10 weeks with a traumatic brain injury and we become good friends with many of the heart families there. Heavenly Father hearts our prayers.

I will continue to pray for your beautiful baby Mia and your family. May she have a quick recovery and a wonderful life.

The Abbotts, Mesquite, NV

Beth said...

I love reading about Mia doing so well. Hip hip hooray! We prayed a lot for that little heart, and it's here. :)
I love having Jense and Ellie here tonight. Thank you! Makayla and Karissa are having a ball.
Love you guys!

Stacy said...

I came across your blog just days ago linked from another friend. I stayed up for hours last night reading your entire blog and your story. (Our babies are within days of each other in age, 7/3.) I cried as I prayed for your sweet Mia and each member of your family. I woke this morning and was brought to tears of elation with your update. Before I layed on my pillow to pray again for each of you tonight, I once again checked your blog. God is good! What a lucky girl to have such wonderful parents, siblings, doctors, family and friends! You are all inspirations! I look forward to continuing to follow your happiness and delight. God bless!

The Transplant Maniac said...

Thank you again for posting another update. Samantha and I have been keeping all you guys in our prayers, and last night, my brother in law and his girlfriend were incredibly moved by hearing the latest on Mia - their little girl is barely a month older than Mia.

I hope you don't mind; I've been keeping the Heart Beats group posted; everyone there is thrilled by this news, and you're in the thoughts and prayers of almost 200 more families as a result.

Hang in there, y'all; this is a marathon, not a sprint, and remember to take care of yourselves, as well; you're no use to each other or your kids if you're too tired to move.

We're all thinking of you.

Steve
Puyallup, WA

kcflee said...

Seeing your daughter hooked up to all the wires and stuff bring back alot of memories. 12 years ago on Dec 6th, that was my son, Austin. Ever since I e-mailed you, I've been praying for your little girl. I am so happy that she got her miracle heart. You will be going through alot of emotions for the next few weeks and talking to others that have gone through the same things wil help, believe me, been there done that. It will be a long road to recovery, but your baby is a fighter and she will be fine. God Bless ~ Kelly

Amanda-The Family News! said...

I am so glad for the update on Baby Mia. I have to agree with you that there needs to be a new word past overwhelmed. She is not even my daughter but I look at my 9 month old daughter and think of Mia - I have been overwhelmed with following along from when Mia was just weeks old to now a new heart at 4 months! What a precious gift you have! My prayers continue for her quick recovery!!!!

CANDS said...

wow, im like barely breathing right now! i just found out and it seriously brings tears to my eyes!!! what a joyous time!! gosh ive been praying (with alot of people) and this is truly a miracle! im so happy for you guys and little mia!! shes such an amazing girl!! i cant wait to see her!!! i checked up on her last week when i was there (i usually dont make it til later in the shift sorry) but wow im so excited right now!!! ill continue to keep her in prayer and i cant wait to see all you guys!! :)

Riley Family said...

What a miracle! What a blessing! I am so glad that she looked at you...I could only imagine the joy that you felt at that moment. I'm so very happy for you!

Deana said...
This comment has been removed by the author.
Carol said...

I've got your word: Supereuphorwhelmed. It's pronounced soo-per-you-for-WELMD, and it combines "super," which means, well, SUPER (duh), with "euphoria," meaning happiness and joy beyond imagining, and "overwhelmed," which you already know means overpowered, incapacitated, or swamped. It's how you feel when something so wonderful happens that you nearly can't take it. I'm delighted that something so supereuphorwhelming happened to YOU!

eRiCa said...

that last line you wrote brought tears to my eyes. Again, I'm just so thrilled for you guys. There's still a long road ahead but I know you guys can do it.

I'm sure being sick is your body's way of breathing a huge sigh of relief and letting down all the defenses it needed to keep up to give you strength. I hope you get well soon.

Still praying for all of you!

Deana said...

John and Mimi, I have been constantly reading your blog, addicted to your descriptions of your thoughts and emotions and wanting a glimpse of that sweet angel, Mia. You both have a way with words, that is beautiful and eloquent.(You should write a book) Thank you for letting us in and giving us hope in our own lives. I pray everday for you all, and hope that the next 4 months are spent making great memories with that baby! I want so much to do something, to help you in some way, please, please know that we love you, think of you often and pray for you daily.

keysha said...

Oh my! I have chills reading your blog; what an amazing series of events you have had! I am so happy for you! Mia is absolutely beautiful and I am so delighted for your family at this special time. I love your blog and the closeness of your family--you are an inspiration to me! You are still in my prayers! (Those cookies look absolutely delicious! Eat one for me:)

Anne said...

I have been dying to call you both and talk to you and tell you how happy I am and hear the relief in your voices. But my phone isn't working at the moment and I figure you have your hands and hearts and minds full. I have so many questions. Like when does she get to be held by doting aunties? I HAVE to visit before I have this baby because it might not happen after that, having a newborn and all. I'll call you soon and hopefully we can set up a visit, if that's ok?

Jim Hutchings said...

I love you.

Stephanie M Larsen said...

I keep reminding myself not to check for updates right after I've done my makeup, but alas I'll just have to touch it up again! My heart is just brimming with joy right along with yours.