Nov 12, 2008

Healing


Mia is doing well and seems to be resting. She has built up in immense resistance to pain meds. The nurse on duty told us that the nurses call her rock star. At first I was thinking it meant that she was tough or well loved, but then realized that it's because she can handle large quantities of drugs and still maintain a level of alertness. Mimi is the same way. It happens when a resistance is built up from having strong pain meds for long periods of time.

I was up in her room until about 2 a.m. last night just enjoying watching her toes and feet flex. What a gift we have been given. One thing that Mia does is put her right fist against her cheek. I think this must be the best thing she can do for comfort. She also will randomly start sucking on her lower lip-we could watch this for hours. A parents love for a baby is a powerful thing.

In a few hours they are going to remove the second of 3 draining tubes from Mia's chest. This one goes all the way up to the top of the incision (by the looks of the x-ray) so I'm sure she will be much more comfortable with the tube out(this is no small tube). Then we will have one more drain tube to go. They started her on a very small amount of milk this morning. They are also beginning to ween her from the ventilator by turning it down in small increments so Mia takes more of the workload. It is amazing how everything changed immediately after surgery. Heart rate down, saturation great, no more fevers. One miracle after another!

19 comments:

Crystal said...

It's amazing how a miracle change things with a snap of your finger, or for Mia and couple of hours in surgery. Thanks for keeping us posted. I am anxious and eager to get up there. I will see you next week as I am sure everyone would appreciate during the most critical time.

Carrie Hellewell said...

We're so happy for all the positive changes. What a miracle. So glad that everything went well in surgery and that Mia is doing so fantastic!

Cindy said...

I am so glad that everything is looking so great! Those chest tubes are huge!!! She will no doubt feel better once it's out.

Since Gavin was older when he had his surgery, he remembers more than he would like. A conversation that happened pre-op was about how he wished he could've had surgery as a baby, so that he wouldn't be as aware of everything, and as scared. He has no reccollection of the chest tube coming out- but I do- and thank goodness for the medication they gave him so he wouldn't remember- yikes!

Mia will have no reccollection of these days- other than the intense feelings of love and affection from all of her family and friends- God is great!!!!

Jim Hutchings said...

Fight Mia Fight....

Lauri said...

She is just about the strongest little human ever. I am so happy that she was given such fight in her in so that she could endure through these tough times. Keep on going girl!
Love Ya

DAN and SARA said...

What a miracle! I just got done reading all of your posts since Sunday and I am sitting in a puddle of tears! I am so happy for your family, and for little Mia. She is so beautiful. I am so impressed with the fight that she has in her, and for the faith that you guys have had. What a happy day! I will keep you all in my prayers.

Katie said...

Wow! Sats are 94?!?!? How I dream of the day Maddie's are above 90 (hopefully in a couple of years!) Sounds like she's doing awesome to have those chest tubes removed and the de-lining process started. What a little superstar! Oh, won't you be so excited for no vent!!! Keep it up precious baby girl! Mimi, hope you're feeling better and on the mend. You're all in our constant thoughts and prayers! Thanks for the great updates.
Love to you,
Katie

Amanda-The Family News! said...

This is truly wonderful!!! I am just so glad for all of the great things happening to your family and baby Mia!!! I know that powerful feeling of love for a baby! I have two little ones and while they were both born perfectly healthy I am very blessed! I also feel blessed to have come across baby Mia's story and follow along to see her get hew new heart. I can't wait to see her get to go home and grow and live a wonderful life!!!
Amanda- SC

Stephanie M Larsen said...

Thanks for all the updates, I know I'm just one of many that check for updates several times a day. We've all just fallen head over heels for this little pip squeak, and I'm so happy to hear all the good news details. It is miracle after miracle. How wonderful!

Riley Family said...

I have to say that I LOVE reading your posts!!! It brings so much joy to know that you are both soaking up every moment of her new found health. What a change of emotions for everyone. I am happy to be shedding tears of joy along with all of your readers.

Peg said...

This is Cindy's Mom again. We are so happy that things are progressing so well. We continue to pray for you all each day.

Brimaca said...

Hallelujah!

The Eggett Family said...

Wow, she really is amazing! She sounds so cute and sweet, with all the little things she's doing, like sucking her lip, flexing her feet etc... I wish I could sit and watch her too. It's so fun to hear of her daily improvements. Go Mia!! Keep it up! How's Mimi doing?

Analisa-creator of hairblingzcutethings said...

way to go mia! i suppose weaning off the pain meds will be interesting huh! i'm so glad more tubes are coming out! she is such a stong baby and you guys are such wonderful strong parents! hope meems is feeling better too, we kept playing phone tag tonight! so happy for your family!

Ryan & Brytten Pettit said...

So happy to hear she got her heart (you didn't have to come to Utah after all;)). Your family is in our prayers, we know you all need them, it wears on the whole family.
HEART HUGS

Beth said...

I am so happy that she is healing. I am happy I got to see her today. She looks great. Well as good as one can look with 5,000 tubes attached to you. John and Mimi it was so nice to see you two together, laughing and happy. I can see the relief in your faces. What a blessing it is to have this strong spirit in your lives. Continue to fight, little Mia, there are hundreds of people praying for you.

Erin said...

All she needed was this heart! So glad to hear she is healing and doing well. It's amazing to see her heart rate at 129. She must feel so.....refreshed and energized! Thanks for the updates, keep them coming! Is Mimi feeling better? Cant wait to hear the details of "the call."

Baseballs and Tutu's said...

What an amazing little girl Mia is! Each time I read a post I sit in awe of what has happened. I have most definitely become an advocate for organ donation since learning about Mia and tell everyone I can about it. Sounds like Mia is making great strides in her recovery! I can't wait to see pics of her with no vent :) Such an amazing family with such a beautiful amazing little girl!!

Shila said...

It's all uphill from here! Wow you guys it is amazing!