Nov 16, 2008

Mia's Heart Sister

Little girl is doing great!! I just finished watching her echo and I am still amazed at how "normal" her heart looks. We are still here in the ICU. Her medications have been tapering off significantly. One medication (that keeps us in the ICU) is causing a little hold up. Mia has been on this drug for soooo long, and now that it is time to come off she needs a little encouragement. Milrinone is a vaso dilator and helps profuse her arms and legs. When they started the weaning process her hands and feet were cold. They increased her dose, and they are going to try and ween more gradually.

I held her all day yesterday- it was beautiful. We watched the notebook together. So, we will be chillin here until her cardiac output can adjust and she can profuse her extremities without the medications.

I have been meaning to blog about Mia's heart sister.

The day Mia arrived so did another little heart baby. They were born within an hour of each other at the same hospital, and shared the ambulance on the way over to Childrens. I think while they were in their little transport isolates they decided they were going to hold one anothers hand throughout their journey.

The girls shared a tiny tiny room in the NICU. When one alarmed so did the other. They often woke up at the same time, and cried in unison. The nurses often commented about how they liked to do things at the same time. It was their way of keeping the staff on their toes. Mia and Sophia had their first surgeries a few days apart. When I walked into Sophia's room after her procedure my legs were weak. Day after day we sat in the same room holding our little girls trying to take in everything that was going on with our babies.

We were discharged from the hospital on the same day, just a few hours apart. They flew home, and we ended up flying back :-(

Last week the unit coordinator called back and asked if I could have a visitor. I looked at the clock and thought- well, they must really like whoever it is to let them back. Then I started to get suspicious so I walked out to find out who it was. Sophia's mom met me in the hall and told me how they had just arrived. Sohpia had an obstruction and was flighted back over. Over the next next few days the girls got to be a few rooms apart. Sophia needed a stent placed, and they were off to the floor.

Sunday night- well you know what happened...

Talia, her wonderful mommy was able to come and see Mia after she received her angel heart. When she got here she told me she would be sending "heart vibes" to Mia- that she did!

I guess since Mia's heart sister was back she would be ok having her surgery. It will be interesting to see how much their lives parallel in the future.

They are back home now, and I am so happy that from our first good bye months ago we are on our path home as well.


Erin said...

How sweet! I bet Mia and Sophia will be friends for the rest of their lives. That's a really cute story.

The Eggett Family said...

So Sweet!! It really will be fun to watch them grow together. They will always be connected through their special hearts!

I'm so happy that you are able to hold Mia now, I'm sure the both of you are just loving every second of it. So Precious!! She is amazing! Keep up the good work Mia

Talia said...

Not sure when I cried more, this time or when I found out about Mia's heart. I can't wait until the day the girls are old enough to hear about their journey together. It still sends chills up my spine to know that we were able to be in Seattle when Mia got her gift. Can't wait to come down next summer and have our girls play!

Amanda-The Family News! said...

Oh I am SO glad you posted about this. I remember reading on one of the posts about the baby born around the same hour as Mia that traveled over with her to the children's hospital and wondered what had come of her. I am SO glad to see she is doing well!!! I am equally as happy to see Mia doing so well!!!!

Rachel said...

Thanks for the update...I've often wondered what happened to that little girl. I always found it amazing they were born at almost the same time with such a similar trial. I am glad she is doing well.

Brimaca said...

So sweet! Cute story.

I love to see the pics of you holding her. Yay!

Sarah said...

So sweet! It will be very interesting to see how their lives parallel in the future, that is so sweet that they have each other :)

Mimi, I can't even tell you how happy the picture of you holding Mia made me. Hooray!!!! I am so happy this day has finally come :)

Analisa-creator of hairblingzcutethings said...

oh, that brought me to tears as well. I remember meeting Sophia's mom! How sad that they are back but I'm glad she is getting better too. I love that you call them heart sisters....they must have really been sending good vibes! i'm sorry mia's not off the milrinone yet. soon, soon! miss you guys!

Maria said...

So cute... They will always have a special bond. So glad you got to hold her too. So sweet.

How does Mia always manage to stay so stylish? She always looks so cute with her hair clips and fancy blankets... I love her!

Baseballs and Tutu's said...

You couldn't of asked for a better day yesterday...after all the days of not being able to hold her I bet you could keep her in your arms forever now!

Stay strong Mia! Praying for all of you!

CANDS said...

wow she is doing SO amazing!! how beautiful! im so so so happy for you guys! and i love the pic of mimi holding little miss mia, simply awesome :)

DAN and SARA said...

Oh, that just gave me the chills. That is the sweetest story. I'm sure they will always have a special bond... how neat!

And I loved the picture of you holding baby Mia... she is so beautiful. What a fighter!

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