Nov 16, 2008
Mia's Heart Sister
Little girl is doing great!! I just finished watching her echo and I am still amazed at how "normal" her heart looks. We are still here in the ICU. Her medications have been tapering off significantly. One medication (that keeps us in the ICU) is causing a little hold up. Mia has been on this drug for soooo long, and now that it is time to come off she needs a little encouragement. Milrinone is a vaso dilator and helps profuse her arms and legs. When they started the weaning process her hands and feet were cold. They increased her dose, and they are going to try and ween more gradually.
I held her all day yesterday- it was beautiful. We watched the notebook together. So, we will be chillin here until her cardiac output can adjust and she can profuse her extremities without the medications.
I have been meaning to blog about Mia's heart sister.
The day Mia arrived so did another little heart baby. They were born within an hour of each other at the same hospital, and shared the ambulance on the way over to Childrens. I think while they were in their little transport isolates they decided they were going to hold one anothers hand throughout their journey.
The girls shared a tiny tiny room in the NICU. When one alarmed so did the other. They often woke up at the same time, and cried in unison. The nurses often commented about how they liked to do things at the same time. It was their way of keeping the staff on their toes. Mia and Sophia had their first surgeries a few days apart. When I walked into Sophia's room after her procedure my legs were weak. Day after day we sat in the same room holding our little girls trying to take in everything that was going on with our babies.
We were discharged from the hospital on the same day, just a few hours apart. They flew home, and we ended up flying back :-(
Last week the unit coordinator called back and asked if I could have a visitor. I looked at the clock and thought- well, they must really like whoever it is to let them back. Then I started to get suspicious so I walked out to find out who it was. Sophia's mom met me in the hall and told me how they had just arrived. Sohpia had an obstruction and was flighted back over. Over the next next few days the girls got to be a few rooms apart. Sophia needed a stent placed, and they were off to the floor.
Sunday night- well you know what happened...
Talia, her wonderful mommy was able to come and see Mia after she received her angel heart. When she got here she told me she would be sending "heart vibes" to Mia- that she did!
I guess since Mia's heart sister was back she would be ok having her surgery. It will be interesting to see how much their lives parallel in the future.
They are back home now, and I am so happy that from our first good bye months ago we are on our path home as well.