Nov 10, 2008

Spaghetti

Mimi said that the tubes all over Mia look like spaghetti and they do. There are a lot of them, but I think our tolerance to the shock of that part has increased. We are just happy to see her doing well. It will be a bit of a roller coaster for the first year, but they say the first week is critical. At this point we are looking forward to a roller coaster of improvements. At least now each step back will be a few steps ahead of any previous setbacks. We are so elated that she can now actually improve!

We just learned that the donor heart blood type is B, and Mia's we know is A. This won't pose a problem with a baby, and they confirmed that Mia hasn't built up any antibodies against A type blood pre-op.

So she looks good. All the docs and nurses are really kind and excited for us, which makes it nice. We can now see the end of this leg of the journey.

22 comments:

Beth said...

Let me know what I can do for you. I would love to help in any way.

TheBastians said...

I have tears in my eyes, you guys. I am so thrilled! You will continue to be in our prayers!

Stephanie said...

Who doesn't love spaghetti?? :)

Brimaca said...

She's an amazing little fighter. How I could love someone I've never met is amazing.

Brimaca said...

Maybe she and my little L knew each other in Heaven.

Amanda & Jason said...

My sisiter-in-law Jen Carver put little Mia's story on her blog. Your baby girl is such a great fighter. She is so amazing in every way. I have read all your blogs about what has been going on. When I looked this morning and saw that she got a heart, tears of joy filled my eyes and my heart was full of hope for your family. I don't even know your family but yet I am so happy in every way for you guys. I have been thinking about Mia all day long and I couldn't wait to get home to check your blog to see how she was doing. Mia is a true blessing. I hope that all goes well and that she gets to come home soon to her cute older brother and sister. Take care and Keep the Faith.

Anonymous said...

Hi, I'm Teagan's Aunt in Az.
I just read your blog. God is soo good. These babies are truley his miracles. May God continue to bless you & your family!
Karen Recker

Autumn said...

This is Autumn (Edwards) Clark you probably don't remember me from high school, I am brittoni edwards' sister in law... I am so happy for your little Mia, I had been reading your blog about her and my heart just ached for you. I couldn't even imagine the pain you have been going through these last few months. I am so glad they were able to find a match for Mia. Wonderful news!!! Heavenly Father was definatly watching over your family. I am so happy for you!!!

Baseballs and Tutu's said...

I couldn't find your blog this morning so I had been commenting over at your friends. Glad I found you though! I just want you to know that I have been praying since 7 am this morning(which would be 4 am your time) and haven't stopped since. Everytime I think of Miss Mia today I tear up. My husband who isn't even into this blog thing called to check on her once! I will continue to pray and keep all of you in my thoughts! Hooray for Mia..what a GLORIOUS day!!!

Dennis, Crystal and Audrey said...

I am sure it was great to see her! If she can make it through the last four months she can make it through this!

FoxFamilyFive said...

I am just now learning of your amazing news. Many, many tears of joy for your miracle. Many, many continued prayers for your sweet girl's recovery.

Love to you all.

Angela

Anonymous said...

We are so EXCITED for all of you and we cannot wait to see her in the office!! We will continue to keep all of you in out thoughts. Thank you for taking the time to update us at this time that probably seems very overwhelming.
Jen and the staff at NorthWest Children's Heart Care.

Carrie Hellewell said...

Thanks for all the updates. So glad that things are going well and that Mia is doing so great. Good luck with the next few hours, days and weeks. We love you!!!

Kirstin said...

Congratulations! I am ecstatic that Mia got a 'great' heart! And I look forward to reading about your rollercoaster of her being able to progress and get better. Way to be a fighter Mia! I am so happy for you.... I have such love for you even though I have never met you!

The Smith's said...

Oh my gosh, I just checked your blog for the first time today and saw the AMAZING, WONDERFUL, GOD-PRAISING news! I am so happy right now and will be praying hard for her recovery. Oh wow, this is just so amazing!

Jesse

Knight Bliss said...

I just saw the news. Mimi I am so happy for you and your family. I can't imagine what you have been through, what a strong woman you are. I will check in often to see how things are going. I pray for you often. Good luck!

Britt said...

Congratulations on getting that heart! What examples of strength & optimisim you all have been.
Hang in there & stay strong!

Izabell said...

this is wonderful news!!!!! yeah!!! way to go baby Mia! we will be praying for a uneventful recovery and for her to be back into your arms soon! what wonderful news!!

Stephanie M Larsen said...

Thanks for all the updates, we've been prayerful of her all day. What wonderful news.

Rebecca said...

I love every little piece of this post and ever other one. Mimi, remember like a year ago when you were trying to get people to read your blog, and you were craving comments?! Not that you wanted this to happen in order to achieve your goal, but it is pretty amazing how many people love you and your family! I love it! I eat up every comment! I CAN'T WAIT TO SEE HER! I can't believe all the miracles that have happened just in the past 24 hours. Amazing. God is good.

Amanda-The Family News! said...

Still praying. I would take "spaghetti" anyday!!! Hopefully soon she gets to be a sweet bowl of ice cream with a cherry on top - without all of the wires and tubes!!!!

The Reynolds Family said...

I have been on pins and needles all day thinking about you! I am SO glad to hear she got a strong heart! Just one more added blessing for all your faith during these past SEVERAL months! This is a miracle and I'm so glad I get to hear about it!