Nov 19, 2008

We've Moved

We are still in the ICU- but we are now on the PICU side instead of the CICU. Our room is huge- and we are loving it. Mia is spending the majority of her time awake and happy. She really wants food. I keep sneaking her milk on her binki. She loves it, and kicks when I take her binki out to re-dip it. She is getting a swallow study today, so hopefully soon she will get something in that tummy.

Everything is going great with her new angel heart. She is doing wonderfully despite the fact that she has very toxic levels of Cyclosporine (immune suppressant drug) in her body. Two days ago her level was 664- yesterday 685. They have been holding the dose, but her levels are going up? Strange!! This probably doesn't mean a lot unless you have a transplant kiddo- but they want her level under 200.

We should be on the floor by the weekend. Then HOME!

* I caught a mini smile on camera.

23 comments:

Danielle said...

Ooooh! She is so pink and smiley. It's good to heat that she is progressing. I am waiting for the day that you get to go home. I am sure that home is a distant memory. Give my love to J,E,M.

Katie said...

So, so cute! What a precious little girl with a precious little smile. So happy to hear that she's doing great and the move to the floor is in the near future! We're coming over on Monday for Maddie's next Cardiology appt. so we'd love to see/finally meet you as long as we're all healthy!!! I'll touch base with you this weekend- take care and keep up the great progress Miss Mia!!!
Love,
Katie & Maddie

Sheri said...

She is so sweet. I can't wait until you can come home!!!

The Eggett Family said...

She looks so Happy and comfortable!! I bet she just feels so good and is LOVING life!! I'm amazed at how good her chubby little cheeks look after taking all the tape off. You would think they'd be sore. She is absolutley precious. That is so cute that she wants food so bad. Poor Girl....I love that you are sneaking her milk. Only a Mom can pull that off :) Keep up the good work Mia, and Mimi I'd love to see more pictures, as I'm sure I speak for everyone else. So when you get a chance do a Picture Post :)

Riley Family said...

Hurray Hurray!!!! And yippee for the smiles. I sure hope her medications can get worked out soon. She is still in our prayers and Ethan remembers to pray for her now too. Keep moving forward Mia!!!

Miller Family said...

Great news. Mia's recovery is just so amazing. Love the precious smile you caught on camera. It's hard to do that sometimes when you have the camera. My two sons (7 and 5) have been praying for Mia each night before bed. Thanks for keeping us updated. Michelle

Lauri said...

I love that picture of her! She looks so healthy! Thanks

Izabell said...

that is a beautiful picture! we are sending our thoughts and prayers and hoping that her med levels settle to a safer level.

Crysm said...

The recovery road is such a better road, isn't it?!?!

Now, don't be surprised with the Cyclo levels. That first year Noah's levels would be great then either spike or drop for no reason at all. So weird but it doesn't stable out as their little bodies get used to it.

And, below 200 is a great level for being so close to transplant. PCMC keeps their levels much higher then TCH in Denver and I believe Denver was even higher. So being good below 200 will really help cut back on side effects.

BTW- She looks GREAT! What a beautiful little princess.

Carrie Hellewell said...

I didn't think it possible to read a baby's smile but you can with Mia. She looks so happy and beautiful. So glad that she's healthy and happy. You're on the road to home!!

Bown Bloggity Blog said...

Hooray! Doing great kiddo. I can just imagine Mims getting to hold Miss M and just purring with happiness. Love you guys.

Rebecca said...

Love it! She looks awesome in clothing!

Analisa-creator of hairblingzcutethings said...

what wonderful news! i can't believe how great she looks! interesting about her toxic drug levels??? i love her lil' face. this cold is killing me that I can't be up there! can't wait till your little family is reunited again!

Talia said...

She looks fabulous! I can't believe you could be at the floor soon! I am so glad she is doing well and I LOVE how chunky she is looking!

Brenda said...

She looks wonderful and it's so great to hear that she's doing well! :)

Baseballs and Tutu's said...

I just love that picture!!! She's beautiful. So happy that you all got moved and hoping for the move to the floor to come very soon!

Praying for Mia's continued strength and for her levels to go down quickly. Stay strong Mia..you're doing great!

leah said...

Love the cheeks! I'm so glad you are almost home. YAHOO!!! I find myself checking your blog a couple times a day to she how Mia is holding up.

Hilary said...

She is so beautiful! I just want to squeeze those cute little cheeks. I am so happy for you all. Much love,Hilary

Brimaca said...

Yay sweet Mia. She is so cute. My heart soars everytime I see a pic. I can't imagine how yours feels everytime you look at her. So precious and healthy looking!

The Scotts said...

Oh I'm so blessed everytime i come here and read. Her smile is contagious even if it's a tiny one. :) Praying for the numbers to go down!

celia said...

I just received the joyous news yesterday and am thanking God that Mia is on her way to health and being able to return home soon. Your blog is wonderful! The only problem is, I can't quit reading! May be late for work today. I will continue to pray for you all.

Celia
(Louisville)

Shila said...

Yay Mia! There is only one tube in the picture, that is so great to see! Can't wait till that one can come out too!

Kirstin said...

She looks so incredible! I love that mini smile too. SHe just looks lit up and happy and healthy... and I can't believe how quickly it all happened. So how much longer in the hospital? When is getting to be home the realistic goal?