We are still in the ICU- but we are now on the PICU side instead of the CICU. Our room is huge- and we are loving it. Mia is spending the majority of her time awake and happy. She really wants food. I keep sneaking her milk on her binki. She loves it, and kicks when I take her binki out to re-dip it. She is getting a swallow study today, so hopefully soon she will get something in that tummy.
Everything is going great with her new angel heart. She is doing wonderfully despite the fact that she has very toxic levels of Cyclosporine (immune suppressant drug) in her body. Two days ago her level was 664- yesterday 685. They have been holding the dose, but her levels are going up? Strange!! This probably doesn't mean a lot unless you have a transplant kiddo- but they want her level under 200.
We should be on the floor by the weekend. Then HOME!
* I caught a mini smile on camera.