Last week at our appointment- we ran in to one of her surgeons. He took one look at her and said, "yep, looks like she on steroids." To which I responded, "HEY" (he knew I was teasing of course). He proceeded to tell me that her look would "go away." Well, I don't want it to go away! I think she is stinking adorable. THEN when we went into her appointment one of her cardiologists said, "we need to start doing something about that second chin." This time I just laughed. Sooo, this is what a baby on steroids looks like. Honestly, I don't think she would look that much different without the steroids. I have chubby kids OK.
Mia has been doing GREAT! Aside from the heinous diaper rash, blood in her stool (yes very alarming, but we can't figure out what's causing it), and her uncanny ability to toss her cookies... she is doing wonderfully. She is Happy despite all of this. We are trialing her on straight breast milk with no extra calories because it contains dairy. I didn't eat dairy with my other two children and they were heavenly. This may help with the blood if it is indeed a reaction to dairy. She is just on so many medications! We switched her from CellCept to Imuran- but it didn't seem to help... it's just frustrating. Wouldn't it be nice to have a crystal ball to tell us what she truly needed and how much? Crystal Ball? Anyone? Someone? We are literally trying every remedy known to man to try and and help her bottom. The only thing that seems to be helping a little is water and air drying. The only thing we haven't tried is crushed up wasp nests...yes it was a suggestion online. If you have a foolproof remedy let me know!