Dec 22, 2008

Steroid Baby

Last week at our appointment- we ran in to one of her surgeons. He took one look at her and said, "yep, looks like she on steroids." To which I responded, "HEY" (he knew I was teasing of course). He proceeded to tell me that her look would "go away." Well, I don't want it to go away! I think she is stinking adorable. THEN when we went into her appointment one of her cardiologists said, "we need to start doing something about that second chin." This time I just laughed. Sooo, this is what a baby on steroids looks like. Honestly, I don't think she would look that much different without the steroids. I have chubby kids OK.
Mia has been doing GREAT! Aside from the heinous diaper rash, blood in her stool (yes very alarming, but we can't figure out what's causing it), and her uncanny ability to toss her cookies... she is doing wonderfully. She is Happy despite all of this. We are trialing her on straight breast milk with no extra calories because it contains dairy. I didn't eat dairy with my other two children and they were heavenly. This may help with the blood if it is indeed a reaction to dairy. She is just on so many medications! We switched her from CellCept to Imuran- but it didn't seem to help... it's just frustrating. Wouldn't it be nice to have a crystal ball to tell us what she truly needed and how much? Crystal Ball? Anyone? Someone? We are literally trying every remedy known to man to try and and help her bottom. The only thing that seems to be helping a little is water and air drying. The only thing we haven't tried is crushed up wasp nests...yes it was a suggestion online. If you have a foolproof remedy let me know!

27 comments:

Abbie said...

Have you tried Greer's Goo? My daughter reacted badly to regular (milk) formula and is now on soy formula but the Greer's Goo (sp?) helped her bum a ton! It had looked like she had some flesh eating bacteria... patches of skin gone, somewhat pussy. Anyhow. You probably have already tried it. But if not, have Analisa contact me. I have the prescription with me still.

Southern Belle said...

I am only saying this because you asked for any suggestions. I am not one to give them because I got VERY annoyed with all the "suggestions" I got sometimes. Anyway, I had a friend try olive oil and she swears by it. I tried a little once and it seemed to help. I am sorry about the dairy thing. I hope it helps and you can find something.

tara said...

Sorry about the diaper rash! My newborn had one straight for 6 weeks that was oozy and awful, I finally got it healed by using a different brand of diaper, and airing her out - by using a blow dryer on low settings in between every change. Just hold her cute little bum in the air and blow away. It's not too hot and it does a better job airing them out without you having a baby that can use anything of yours as her toilet. Also, Aquaphor is an amazing diaper rash ointment. Good luck!

Amy said...

Ouch poor girl!
We have had luck with Desitin regular (not creamy) and we also
had an anti fungal cream recommended by our pediatrician that cleared it up right away. Good luck

Anonymous said...

On our babies in the hospital, we use a combination of stoma powder (for ostomies) and a diaper paste. You can find stoma powder at health supply stores- it really works wonders....
Also, we leave this crust on, don't wipe if off with each change! only gently remove the soiled parts, then crust her up again :)

Amanda-The Family News! said...

My FAVE diaper cream and what worked the best for both my kids is Boudreaux's Butt Paste.... (Babies R Us and Target carry it - Walmart too I think)....

Jen Faultner said...

Zoe gets horrible diaper rashes too. I hate to say it but the thing that turned the tide was switching her to 7th Generation Diapers (they have no chlorine in them). When it's at it's worst I also gave her a little kitchen sink bath at least once a day with a TON of baking soda in it (around 1/2cup+). Something about the baking soda helped clear up diaper rash and her excema.

Lauri said...

I'm glad to hear that Mia is doing fairly well and I am so happy to see pictures of her! I hope that the "routine" is starting to come to you guys. Are you getting any sleep?

Makayla used to get terrible diaper rashes and her pediatrician recommended mixing Milk of Magnesia(regular form) with vaseline to make a paste. The MOM nuetralizes the acid that contributes to the rash. It worked great on Makayla.

Whatever you find works for you, I guess you have a bundle of options!

Sheri said...

I see someone else suggested Eucerin Aquaphor - my sil swears by it. My pediatrician with Jessica had me use an ointment called Resinol - I love it. It can be kind of hard to find, however. I think I may have a jar or two stashed away. If I do, I'll bring one over for you to try.

Amber H. said...

Hey Mimi!

This is Amber Halversen...I don't know if you remember me or not. Me and my husband Josh were in your ward in Provo :o) I've been following your story for a while now. I am SO glad your little girl is doing so well! I just thought I'd mention our few remedies in case they help. First is Bag Balm...kind of weird I know, but you can find it in the animal section at wal mart. It's in a small green square can. It is what they put on cow's udders when they get irritated from getting milked. It works almost every time...literally overnight. Anyway, that works for us, and if that doesn't seem to do the trick, there is another cream we use called Calmoseptine. Whenever the bag balm doesn't work, this does. Also, putting this stuff on with a TON of baby powder (with baking soda) works really well. Good luck and I'll keep checking in!

Chris & Tammy said...

I dont know if this is something you could try or not, but Dr. Sillito could tell you what the cause is by body testing her. He could tell you if its your breast milk or something else you are giving her. He can test her through you.

Anonymous said...

A product mentioned in this post might be something you could try.
http://www.prayingforparker.com/?p=630#comments
Jon Bishopp's mother

Emily said...

Long time lurker but I don't think I've ever commented. This post made me laugh because my daughter spent the first 8mos of her life on steroids (different issues, lung related) and had the big time steroid look. Her doctors would ALWAYS comment on it but I loved her cheeks. She's now almost 3yrs old and an itty bitty, petite thing and it's so hard for me to picture her with those fat steroid cheeks still.

Analisa-creator of hairblingzcutethings said...

I'm so sorry about her bum! Glad everything else is going well. I will second the fact that you do have chubby kids, remember I was trying to tell the transplant cardioligist that! :) so cute though. hope you guys are enjoying this crazy snow. miss you.

Izabell said...

Izzy was on steriods for over a year and was very puffy:) I loved the puffy checks! We used destine for Izabell I like the way the creamy smells over the regular but she did not have bad rash we just did it as prevention baking soda baths are soothing though like jen said. I hope that her bum is feeling better soon. sending our love! wyndi and izzy

Katie said...

Her cheeks bring a huge smile to my face everytime I see her! So happy to hear she's doing well! Merry Christmas to your family :) what a special one for you all! BTW, we're having a problem with diaper rash too...glad you asked for some suggestions, I'm going to try some!
Hugs to you!!!
Katie

Shelley Eggett said...

OH, her poor little bum! I really don't have any awesome suggestions. I've always just used Creamy Overnight Desitin, but I can't say I swear by it. There are lot's of good tips on here though, I might have to try some of them next time Kendra gets a bad rash. I think her little cheeks are adroable and I wouldn't think anything of it, lot's of babies have chubby little cheeks like that. The more to dig your nose into :)

Good Luck with her Rash, Meds and all the other things that need working out. You'll have to let us know if you find something that works for the diaper rash.

Merry Christmas!!

Alicia said...

Our nanny's miracle rash cure is Mylanta mixed with Aquaphor oinment. Mix until it is the consistency of frosting. Same principle as the Milk of Magnesia + Vaseline. Hope she's better soon!

Family Scads said...

I am queen of the diaper rash remedies! My favorite for super duper (seriously) diaper rash is Ilex & Proshield (Ilex on the bottom and Proshield over top). Only use this at night because it is the big guns and it is too hard to get off their butt during the day. During the day I like to use Calmaseptine or Criticade for the same bad diaper rash. If they only have a mild rash I use the purple Desitin. It sticks to their butt the best. If you want more info on any of them e-mail me! Beck gets such bad diaper rash (open, bleeding sores) and I have tried everything!!!

Has Mia been tested for CMV? Beck has had on and off bloody stools since his transplant and the culprit always seems to be CMV.

Hope that helps! I agree with you that Mia looks adorable with the chub!

Anonymous said...

Ok, you don't know me but I have the best diaper rash solution. Get liquid Mylanta or another stomach acid medicine. After the bum is clean and dry dab some of the liquid on. It will dry chalky. Once dry put Desitin or any other bum cream the top it off with baby powder. The Mylanta will cut the acid and help heal that toosh.

Anonymous said...

Hey Mimi, it's Kate(prior NWCHC employee), my sister niece is 1 month old, and she had the worst open sore, bleeding rash, and a friend of my sister's suggested burnt flower(homeopathic), anyway it really worked, her rash is finally gone, before that she used Dr. Abdullah's butt paste, or 1% hydrocortisone, none of those worked, but the burnt flower. Hope it works! Take care-Kate

Anonymous said...

Bag Balm, works wonders.

lara.frandsen said...

Clotraminazole(spelling?) which they have at Costco in a dual pack. It's basically the generic of Lotrimin(Yup, athletes foot medicine). It works for us. Also, Huggies Sensitive wipes are the only wipes I've found without the alcohol(Pampers sensitive has it). They make a huge difference in the sting of the wipe. Good Luck!

The Simmons Family said...

Oh... I LOVE MIA's chins and CHEEKS... how can you not?

Unfortunatly, I don't have any diaper rash remedies... but looks like you have some shopping to do with all the other suggestions!

MERRY CHRISTMAS! I am so thrilled that you are ALL home together and doing well.

Andrea

molly said...

I'll have my mom look for some lansinoh tomorrow. It was wonderful for everything to cracked and bleeding nipples to diaper rash; even exzema was cured by this stuff!!! We called it "princess cream"

Brimaca said...

She is so cute!!!! Good luck no figuring out the diaper rash. Keep the pictures coming. I can't get enough!

Anonymous said...

I have tried and loved Acid Mantle Cream (I think it is just called MANTLE Cream now) You have to ask for it at the pharmacy but all major drugstores (Target, Walmart, Etc) have it.

Good Luck