Mar 8, 2009
Jamie's Heart Gala
This is Tim, (top right) founder of Jamie's Heart Foundation. He started a foundation after losing his little daughter to a congenital heart defect. We were invited to the second annual gala that was held in Tacoma. It was a beautiful evening with heart themed everything. I loved all of the heart details! I am in awe of how many parents reach out to other families experiencing what they went through with their own children. Tim and his wife have created an amazing legacy for their daughter, and I felt privileged to be a part of it all. My favorite part of the evening was watching a slide show of Jaime's journey, it was really touching. Now that I am a heart mommy I look forward to many more years of events like this. This is an incredible foundation! Thank you Jamie's Heart, and Erika Kate foundations- for showing us heart families what amazing parents are given these miracle kids.
When we got there we there were a few friendly faces. Jesse (pictured with Tim and me) is Luke's mommy. I was so excited to see her. She's Great! We got to visit, and I met other heart families that live locally.
The other friendly face (top left) is my cardiologist Chris Stefanelli. This man is responsible for keeping me alive ;-) Dr. Stefanelli is a wonderful doctor, despite delivering the news that my baby would need a transplant- all of our visits have been happy ones. I got to meet his gorgeous wife who is also a doctor. I don't think I have blogged much about my own heart defect, but I too have a congenital heart defect. Yes, it's true. Mia gets her lovely heart gene from her moma. I have had three heart surgeries and currently live with a donor valve in my heart. CRAZY I know. Who knew I would have a transplant baby... isn't my heart problem enough??? Seriously!! The valve I have now lasts 10-30 years. I am 8 years out- so this ticker still has some tick in it. So here I am a heart patient taking care of my own heart patient- that's comedy folks... a very sad twisted comedy.
To be honest I was always proud of my heart problems. I liked missing school, spending the day with my mom, eating whatever I wanted, and stealing purse loads of sugar free suckers from the Dr. offices. Minus the surgeries, it really has been fun to have something unique about myself.
Boy o Boy do I feel differently being the mom of a heart patient. Obviously what I have been through with my heart is a far cry from my sweet little Mia's experience. No amount of sugar free suckers will ever mask the intense pain my heart has experienced this year. I hope at my next check up my heart will not reveal the torture it has been through. Someday I will blog about my own heart journey. For all you moms with mild to moderate heart defect babies, know that my mom was able to make it a positive experience for me! Until Mia- I knew no heart sadness. With each smile she makes the sadness disappear. I worry about her future, but try my darnedest to live for today. Someday Mia and I will do something great for the CHD community, for now I am just going to let those little smiles heal this mommy heart.