Yesterday we had Mia's check up. It was a busy day. Besides doing our usual stuff we had a lot of heart babies to visit. I haven't been brave enough to take her over to the ICU because the germs paralyze me. We had a few hours to wait for labs so we made our way over to see some of our favorite people. Mia got to see many of her nurses, and two doctors. I felt like I was holding the celebrity baby in the waiting room. It was fun for them to see her smiley face.
Mia loves getting her echos. She doesn't stop smiling. My favorite thing about the echos is watching her hold onto the fingers of the tech. She thinks she knows a thing or two about where that prob should go. She also likes to pull off the leads. It cracks me up!
Gearing up for labs. Poor thing- I think she has caught onto the the fact that a warm compress equals owie pokes. This is by far the worst part of our visit.
This is our man Hector. Let's just say he has saved me from going insane. He is the only one who can get blood from our little one. Mia has to have blood draws every week and without Hector; Mia, along with a lot of other cardiac babies would be hatin it! He has superhuman vein finding powers. We love you Hector! (Heather my sister in law was with me and took the pics. Read on to see why she was there.)
Meet baby Karlee. She is another transplant baby... and she is on THE FLOOR. They are practically out the door. Yay Karlee! Both of the girls were fast asleep, so we didn't get a pic of their faces, but they are so happy with hearts that work!
I also saw Victoria's grandma, but her mom wasn't there. Also, it was Daniels birthday. I saw his mom briefly but didn't get to see him. Happy Birthday Daniel! We just missed Shayla- she is finally out of the hospital. There are so many transplant babies in Seattle right now.
This is our little buddy Joshua. He is all hooked up to the bi-pap. He stole my heart when he looked at me with tears rolling down his cheeks. He did not want that thing on his face and just wanted someone- anyone to rescue him. I saw the same look in Mia's eyes so many times. As a parent, you have to contain your frustration and instinct to lash out and make it stop. So many helpless feelings came rushing back seeing him cry. We first met Josh when he was next door to us waiting for his angel heart. He was a lively little guy and I had a hard time believing he needed a transplant. This picture was taken right after he was extubated...this is great news! Please pray for sweet Joshua- he has had a long road.
Last but certainly not least is MY sweet my little nephew Gavin. Two days ago my sister in law Heather called telling me she was on the way to Children's and something was wrong with Gavin's heart. I couldn't believe my ears. I had just seen him a few days prior and he looked perfect. Apparently he has a kink in his artery( coarctation of the aorta.) He is going to have surgery in the morning. I can't believe this has happened. Right now they have him on the medicine that Mia was on. It is super nasty medicine that keeps the PDA open. I guess this medication makes kids feel awful and sensitive to touch. Poor kiddo! The nice thing is they can go through his side and it will be a relatively quick procedure. After visiting with her and giving her all of my ICU advice I walked away as the visitor and she walked back into the NICU. For so many months I would say goodbye to my visitors and walk back into where my baby was. I never thought I would be visiting a family member and be the one leaving. Esspecially so soon after our experience with Mia. He is such a cute little guy. I am soooo glad his doctor ordered a x-ray and they caught it before his PDA closed. It is a miracle! We love you Gav and will be praying for you.