The other morning I had a dream that Mia’s feeding tube came out and she magically started taking a bottle. I woke up the happiest mommy alive! Finally no tube, finally no medical equipment, finally no gagging around the clock.
My dream came true, maybe not in the fashion I was hoping, but it did come true. One week ago she wouldn’t stop gagging, even after throwing up her entire feed. Reluctantly I pulled the tube and she fell fast asleep. I had the go ahead to feed her by mouth and not worry about getting in the volume. The plan was to teach her that she had to eat in order to make that feeling in her tummy go away. I woke up at 6:30 ultra groggy because I logged in about two hours of sleep. I prepared her bottle and to my surprise...she started to drink it up. Maybe the desire to eat is increased when you don't have a tube going down your throat. Over the next two hours she drank down 60 cc’s. I couldn’t believe it- I was elated. Over the course of the day she averaged about 30 cc’s a feed which is NOT ENOUGH. She was still drooly so they told me to keep going. They aren't worried about her weight, but didn't want her to get dehydrated. I took her for a blood draw the day before and one of her labs came back with one level showing she was borderline dehydrated. I had to put the tube back in- AAARRRGGHHHH.
The problem: Her stomach is not used to any volume whatsoever. Her dose is spread over an hour. Babies generally take twenty minutes or so to eat. I think once the rate is where it needs to be she will be sucessful at taking a bottle. When she drank 15 cc’s in 3 minutes her tummy was maxed out, because it isn’t used to taking so much so fast. big sigh.
Since her trial her stomach must have gone down in size so now her feeds are going in slower than previously. I guess I will slowly climb up in rate again- it is so difficult to back track!
If anyone has any ideas about teaching hunger let me know- I am desperate. Mom's of peemies.. Are you out there? ANYONE? We do have a feeding therapist- but I am looking for the magic recipe. Easy button please!
Mia does love sitting in her highchair with us at meal time. She is very observant and watches us all eat, but when I present her with something to eat her lips are glued shut. She does like frosting, but a frosting diet could only last so long.
* A huge thank you to everyone who visited Gracie's blog.