Nov 14, 2010
Not so fast
They gave her a few shots to stimulate some bone marrow growth. Her counts are continually low and her body needs to replenish her blood to help fight this off.
Her gums have not improved. The gums behind her teeth are lower than her actual teeth... it is as if she is un-teething or something. She still hasn't eaten anything, but is doing OK with the fluids. I know she wants to eat and it is heartbreaking. When something goes in it just comes out bloody. I can't convince her to to eat anything soft either- she pushes everything away. I have to force feed her meds and that has closed the door to any spoon fed nutrition.
She toss and turns in delirium most of the day but she does have moments of clarity when she will start labeling everything. "mommy" "ba" "baby" "lalaaaah" "night" She does a lot of asking for "mommy" and "mimi" when I am holding her- when I say asking- I mean yelling. She also says "no" over and over. I think she is just ready to get out of here.
I think our ticket out of here will be when she doesn't have fevers and her gums go down at least a little. I know they would let me take her if she would get down the fluids she needs, but they don't want to release her until the fevers are gone.
The Good news is: I got to change her shirt... yay! Her hair is still a ratted mess from all the rolling around in confusion. I have my work cut out for me.
Yesterday some volunteers stopped by... I was able to run to the cafeteria lickety split. I love that college students stop by to volunteer at the children's hospital. It is so sweet! Usually we have had grandma and grandpa volunteers. They are all neat people!
I wish there was something better to report, but it's pretty much the same status as when we showed up. Fevers, swollen gums, IRRITABILITY :-) She has scheduled tylenol that helps her get to sleep, but once she is asleep she wakes up because of the beeps, arm straightening, vitals, medicine, etc. It's sad to say but not even watching Olivia on Nick Jr makes her happy.
I can get her to smile if I laugh hysterically. She has always been a social laugh-er and can't help but smile if I force laughter. When she does smile she looks like she just stepped out of a dentists office. Her little cheeks try to maneuver over those gums and just looks like she had some major dental work done. We had a good visit with Auntie Heather last night- Mia was fussy, but allowed me out of the bed- thanks Mia :-)
-pictures from a happier time. Mia is so cute! I love how Ellie is assisting Sam on the ride-on toy in the background. She is all over that baby...and from what I hear has been a fantastic fill in mom while I have been gone. My kids are coming up today! Can't wait to see them. Hooray! They have been asking to come up all week. The nurses give them ice cream when them come. I personally would rather give them ice cream to stay home :-) I don't like them in a hospital. I want to keep kids in a hospital to a minimum...one if possible. Too many germs!
Once again... hopefully she will turn a corner soon.